Chasity
05-04-2005, 02:10 AM
My son Shawn is about to turn 3 at the end of May. He was born with a PWS on the entire right side of his face going all the way into his hair. He was diagnosed with right eye glaucoma at birth 5 surgeries later it is currently controlled with a shunt and he has been eye drop free for almost 1 year. He has glasses (that he breakes all the time) He started having seizures September of last year and we are trying some different medicines to get them under control. He has been on keppra and is currently on Lemictal and it seems to be doing alot better he hasent had a seizure for 1 month. His birthmark is lightning with the pulse dye laser. He is very slow with his speech but he is picking up really fast. He has 2 brothers Nick 6 and Jacob 1 and he really bullys them around. We will be going to John-Hopskins Hospital at the end of May to the Sturge-Weber clinic there.