Sturge-Weber Syndrome Community

Full Version: Volunteer Introduction
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Hey All!

I live in Canada's beautiful capital city, Ottawa, ON. I am a volunteer for the Canadian SWS community. My introduction to SWS happened when I first started working for the company I am presently employed. My supervisor, Tom has SWS and I have witnessed some of the symptoms of this rare condition. Before meeting Tom, I had NEVER heard of SWS and when I mention his condition to my family and friends, NO ONE HAS EVER HEARD OF SWS. We need to get more awareness out into the world about SWS, in order to minimize ignorance. We also need to provide more support to the families out there who are living with SWS, in order to provide them with a support system and some well deserved unity. Let us join together to educate the world about SWS. Very Happy
Shannon:

We are so glad to have you and the rest of the Canadian members here to help us. Thanks to all of you. Welcome aboard!

CANADA ROCKS!!!!!! LOL!

Glenda
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