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SWS
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Gail G
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SWS

Is there anything terminal about this diagnosis? i don't mean to sound dense but i am just starting my research and have been afraid to ask this question. It seems there is such a grand variety of levels of SWS i am not sure what is at the end of the spectrum. Thanks
gail.
mom to baby jack 7 days old with extensive PWS.

01-22-2005 06:39 PM
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Hank
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Gail

Hi Gail,

I am glad to see you are axpanding your search options.

Hank

01-22-2005 07:27 PM
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swsc
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Gail:

I hope you don't mind, but I sent you a private email.

Glenda

01-23-2005 04:20 PM
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Mona
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Hi

Hi , I read your post from January and was wondering how Jack is doing. I have a 10 week old with PWS and poss. SWS & I have so many questions and fears and really would like to chat with someone who has been there.


Mona, mother to Farrah, 10 weeks, PWS, poss. SWS?
05-27-2005 08:47 PM
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swsc
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Mona:

Please join us on the SWSC MSN Support Group. We have a chat session tonight at 9:00pm EST.

Go here to join:
http://groups.msn.com/Sturge-WeberSyndro...tySupport/

If you have any problems, let me know.

Hope to talk to you soon

Glenda

05-27-2005 09:04 PM
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