Meet Kathy, SWSC's new Volunteer Representative

WELCOME TO
THE STURGE-WEBER SYNDROME COMMUNITY

A worldwide community for individuals and families living with Sturge-Weber Syndrome

This site is dedicated to the adults and children living with SWS, and their families and friends.

Each case of SWS is unique to the individual. The needs of a patient can vary greatly, depending on the symptoms and their severity.

We hope the information provided on this site will prove beneficial to those seeking help and answers about SWS.

Please contact the SWSC if you need further help or information, or if you have any suggestions or comments.

New Research

Low-dose Aspirin Treatment for Sturge-Weber Syndrome (SWS) Survey

Use of the Atkins diet for children with Sturge-Weber Syndrome

Join the VBF 2008 Day of Awareness Campaign
Tell Your Story
Help us Raise Needed Funds

Buddy Booby says, “Come in and see what’s new”.

Welcome to VBF 2008 International Day of Awareness: http://birthmark.org/awareness/

Look what’s new, VBF 2008 International Day of Awareness! We are excited to launch our international campaign for awareness on May 15. It’s the same day with a new look. Explore the new website and join in the fun.

This grassroots campaign serves to educate the public about vascular birthmarks and their related syndromes, and raise funds to support the work of the VBF.

VBF International Day of Awareness officially takes place annually on May 15, and is celebrated by hundreds of friends from around the world; however, many events are conducted throughout the year.

Participants can have fun while working to help those affected by birthmarks. Some past events include lemonade stands, garage sales, jeans day at work, a birthday party fundraiser, awareness bracelets and VBF We Care Bears sales, bake sales, sponsored marathons, Buddy Booby book read-along, a penny drive – the possibilities are endless.

There is something for everyone, especially you!

So please make your plans to participate in this event. Once you have registered your event, VBF will provide you with supportive materials and offer any assistance we can to make this campaign enjoyable and successful.

If you are interested in participating, visit the VBF International Day of Awareness website, or write to Paige Salvador at BASPASTS@cs.com.

Save the Date
2008 VBF International Conference and Masquerade

The VBF International Conference will be held in New York City on Saturday, November 15, 2008. Highlighting the conference are the top physicians in the world on vascular birthmarks and the related syndromes.

Prior to the conference, on Friday, November 14, 2008, VBF is hosting a Masquerade and Auction to benefit the work of VBF. This event will include live entertainment from guest celebrities, as well as one-of-a-kind and collectible auction items.

Information concerning registration and itineraries for these events will be posted soon, so please check back for all the exciting details.

VBF Names Dr. Alejandro Berenstein Physician of the Year

Alejandro Berenstein, M.D., was named this year’s recipient of the VBF Physician of the Year award for his outstanding and innovative techniques in treating massive, complicated, and often life-threatening vascular malformations and hemangiomas.

Dr. Berenstein is the Director of Beth Israel’s Hyman-Newman Institute for Neurology and Neurosurgery (INN) at Roosevelt Hospital in New York City, a state-of-the art facility for the diagnosis and treatment of neurological diseases and complicated vascular malformations and hemangiomas. He is a pioneer in the field of Interventional Neuroradiology, a specialty that utilizes minimally invasive procedures to treat conditions related to the vascular system of the brain, head, face, spine, and spinal cord.

Read More about Dr. Berenstein

Always seek the advice of a physician or other medical professional for diagnosis and treatment. The SWSC and/or VBF are not responsible for the content or accuracy of any information, advice or links on the site.

The SWSC is a branch of the Vascular Birthmarks Foundation. VBF is a fully approved not-for-profit. Your donations are tax deductible.
Federal Tax ID 16-1515227