May 28, 2003
Welcome to the Sturge-Weber Community
Saturday May 24, 2003 18:18:54
This is the very first edition of the Sturge-Weber Community site
Newsletter. We hope you enjoy this monthly feature.
We are planning to add new areas to our web site, so be sure to
check back at the site periodically. The site was founded as a meeting
place for families and individuals affected by Sturge-Weber Syndrome(SWS.)
Membership is free, and anyone interested in SWS can join our Community.
If you would like to contribute a story or any other type of article,
please contact us. Also, you can submit a story or article by clicking
on the "Newsletter" link at our web site.
Web Site: http://home.insightbb.com/~gnethi
Sturge-Weber Community Talk Support Group
Wednesday May 28, 2003 14:27:12
We have established a new Yahoo Support Group for the SWC. The
group is listed as swctalkcommunity in the Yahoo Groups listing.
To be added to the group, go to http://groups.yahoo.com and enroll.
You can also use the link to Yahoo by clicking on the "Contact"
link at our web site. There you will find the link to join the group.
While our Community is very small at this time, we hope to build
a network of help and support. Our plan is to establish a Community
where families, friends, individuals with SWS, doctors, clinics
and companies can come together to provide assistance and information
to the benefit of all.We welcome all ideas and suggestions. Please
join our Community.
Spread the Word
Wednesday May 28, 2003 19:25:20
We need to get the word out about our new Community. Please feel
free to let all your friends and family know about the SWC. Also,
we would like to add information in the "Doctors" Category
on our Home Page. Please contact your doctor (and any others in
your area) and seek their permission to include their information
on our web site. We also need links to add to our "Links"
section, so let us know your about favorite web sites. Also, if
you know of anyone who would like to include us in their own link
section, please ask them to add our URL. Please direct all information
gathered, or any questions to firstname.lastname@example.org.
Thanks for all your help in making this site a success.