The Sturge-Weber Syndrome Community considers your privacy with
the utmost importance. Please know that, due to the nature of the
Internet, communications with the Sturge-Weber Syndrome Community
cannot be made totally private. If you wish to write to us, use
our online Discussion Forum, or communicate by email, the Sturge-Weber
Syndrome Community is not responsible for your privacy. In our Discussion
Forum, information that you put in may be public. The Sturge-Weber
Syndrome Community may contact you, by email or regular postal mail,
but will not sell, rent, lease, or otherwise make your information
Always seek the advice of a physician or other medical professional
for diagnosis and treatment. The Sturge-Weber Syndrome Community
and/or Vascular Birthmark Foundation are not responsible for the
content or accuracy of any information, advice or links on the site.
In case of links that go outside of this site, the Sturge-Weber
Syndrome Community or the Vascular Birthmarks Foundation is not
responsible for the content or accuracy of any information on other
Information Collection and Use
The Sturge-Weber Syndrome Community is the sole owner of the information
collected on this site. We will not sell, share or rent this information
to others in ways different from what is disclosed in this statement.
We may use IP (Internet Protocol) addresses to administer the site,
track user movement and gather demographic information for aggregate
use. IP addresses are not linked to identifiable information. This
information is only used to upgrade and maintain our web site.
This website may contain links to other sites. We are not responsible
for the privacy practices of other sites. Read the privacy statements
of each website that collects identifiable information. The Sturge-Weber
Syndrome Community does NOT pass on identifiable information in
This website takes every precaution to protect users' information.
When users submit sensitive information via the website, their information
is protected both online and offline.
Sensitive Medical Information
The Sturge-Weber Syndrome Community does, by its nature, sometimes
become aware of sensitive medical information through the Ask the
Doctor feature. This information is used internally and not sold,
shared, or rented by the SWSC. Any photographs, drawings, descriptions,
or other visual means of representation of medical conditions remain
the property of the patient and will not be displayed on this web
site without permission from the owners or guardians.
The use of the Sturge-Weber Syndrome's discussion forum is voluntary.
This forum is public and provided to the users as an informational
and support tool. The Sturge-Weber Syndrome Community cannot be
held liable for any information, photographs, or personal information
The Sturge-Weber Syndrome Community makes this site available for
the sharing of information. All information contained herein is
the sloe property of the Sturge-Weber Syndrome Community, including,
but not limited to, the information on the Discussion Forum. It
may not be copied, distributed, or used in any print, online media,
or any other media vehicle without our express permission.