Sturge-Weber Syndrome Community Individuals Group

Welcome to the SWSC Individuals Group. This group is solely for individuals who have Sturge-Weber syndrome. You must be at least 16 years-old to register. This is a private, members-only area, where you can share stories, photographs, and talk about issues that concern you.

Please register to become a member of the Individuals Group. You will be asked to answer a short questionnaire. All information provided is considered confidential and is for the sole use of the SWSC Individuals Group only.

If you have already registered, please login here

or

go to the chat room

Once your registration information is received, you will receive email confirmation regarding your acceptance to the group. At that time, if approved, you will also receive an ID/Password to access the group. Members will receive their own page for posting a mini-bio and picture. Approval takes 24-48 hours. If you have any problems registering, contact the SWSC at: swsc@swscommunity.org Subject: Group Registration

Meet Our Volunteer Staff:

• Paul Siegel – Chairman
  Paul lives in Maryland, and is presently attending college.
• Michelle Mora – Vice-Chairman
  Michelle lives in Louisiana and works for the Epilepsy Foundation.
• Brenda Villa – Adult Advisor
  Brenda lives in Arizona, and is the mother to two teenaged boys

If you are an individual with Sturge-Weber syndrome, the Sturge-Weber Syndrome Community needs you! If you would like to become an active participant in the decision-making and direction of the SWSC, please contact us. The SWSC exists to serve all individuals living with SWS. The SWSC is dedicated to your cause, and can only grow and succeed with your help. Finally, here is your chance to be heard. The SWSC is your community.

Contact the SWSC
Email: swsc@swscommunity.org Subject: Individuals Group
Phone: 859-272-3857
Mailing Address: SWSC, P.O. Box 24890, Lexington, KY 40524-4890

Always seek the advice of a physician or other medical professional for diagnosis and treatment. The SWSC and/or VBF are not responsible for the content or accuracy of any information, advice or links on the site.

The SWSC is a branch of the Vascular Birthmarks Foundation. VBF is a fully approved not-for-profit. Your donations are tax deductible.
Federal Tax ID 16-1515227