Glenda Ethington is cofounder of the Sturge-Weber Syndrome Community, a worldwide organization for individuals and families living with Sturge-Weber syndrome (SWS.) Her grandson, Glen, has SWS and she was inspired by his courage to form an Internet support group for SWS, which eventually led to the SWSC chapter membership into the VBF. She has a background in print journalism, and currently resides in Kentucky.
