VBF-Sturge-Weber Syndrome Community

Official chapter of the Vascular Birthmarks Foundation (VBF)

Research Leads to the Identification of the Gene that Causes SWS

Read about the study as reported in The New England Journal of Medicine:

Sturge–Weber Syndrome and Port-Wine Stains Caused by Somatic Mutation in GNAQ

VBF Day and Month of Awareness

The VBF International Month of Awareness for Vascular Birthmarks is in May and the VBF Day of Awareness is on May 15, marked by Congressional Resolution. Join us in raising awareness all year. Visit the VBF website for ideas on how to start your own awareness fundraiser at:  https://birthmark.org/awareness/

Buddy Booby’s Birthmark Book Read- Along

The Buddy Booby’s Birthmark Read-Along campaign and the VBF International Day of Awareness make significant contributions towards worldwide birthmark awareness and acceptance of all differences.

Visit the VBF website to learn more about how YOU can raise awareness for vascular birthmarks by hosting a Buddy Booby’s Birthmark read-along.  All proceeds from Buddy Booby’s Birthmark books go towards our mission of helping those affected by vascular birthmarks. https://birthmark.org/join-the-buddy-boobys-birthmark-read-along-every-may/

Register now for the VBF Vascular Birthmarks Conference & Clinic

October 12, 2019 in Irvine, California – click here to learn more!

VBF Newsletter

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